In a courageous stand against a debilitating health condition, Democratic Representative Jennifer Wexton, 55, revealed that she is grappling with what she describes as “Parkinson’s on steroids” – specifically, progressive supranuclear palsy (PSP). Despite her earlier decision not to seek re-election, Wexton remains resolute in completing her current term, concluding in January 2025, as reported by CBS News.
PSP, a rare neurological disorder lacking a cure, has taken a toll on Wexton’s health, exacerbating since September. In a candid statement, she expressed, “I’ve been worse since September. It’s been tiring. It’s awful.”
The challenging 10-week session in the House, marked by the looming threat of a federal shutdown and the drama surrounding the election of a new speaker, proved particularly strenuous for the congresswoman. Wexton attributes her physical decline to the relentless tension and floor votes during this period, culminating in a recent fall that resulted in a neck injury.
Speaking with difficulty, Wexton lamented, “Fellow members don’t know what to do with me because they can’t understand me. I want to try to jump into conversations, and I can’t. Cognitively, I’m just fine. It’s just so frustrating for me to not be able to communicate verbally.”
In an effort to facilitate communication, Wexton’s chief of staff, Abby Carter, sent a letter to lawmakers advising them to ask Wexton to repeat herself or to write down her statements if necessary.
Reflecting on her condition, Wexton expressed her frustration, stating, “It’s not OK. It’s not OK at all. … I’m going to die, which isn’t fair.” She recounted asking her doctor about the possibility of running for re-election after her diagnosis, to which he responded, “Why would you want to?”
According to the National Institutes of Health, PSP significantly affects body movements, walking, balance, and eye movements. The disease typically worsens rapidly, leading to severe disability within three to five years of symptom onset. Complications such as pneumonia, choking, or head injuries from falls are common.
Wexton’s openness about her battle with PSP aims to raise awareness about the disease and the critical need for a cure. As she confronts the challenges ahead, her determination to fulfill her term serves as an inspiration amid adversity.
